Tuesday, October 29, 2013

Hard post to write

I've not posted much this year, having been taken by ambulance to the university hospital down in NC 6 times in 8 months (Feb 1-Oct 3) and then time at home to recuperate. 

My liver disease has finally become worse, after a long 'remission', and recently my doctors have diagnosed the beginnings of hepatic encephalopathy (HE) from high ammonia levels. My liver has quit making enough enzymes to fully digest proteins, and the undigested proteins in the intestines cause ammonia build-up. The ammonia affects the brain.

My plan is to move to Asheville, NC in the spring where good health care isn't a 2-1/2 hour trip each way (I'm going 1-2X a month now), and where there is excellent hospice when I finally need it. I lived in Asheville for years and still have many friends there, so I'll have support and a sense of community. Asheville is very alive, and has half a dozen natural foods grocery stores. The closest ones to me now are 125+ miles away.

I'll have to find shared quarters, and store a lot of stuff I don't sell here first, as the COL in Asheville is high, but the medical trade-off is worth it. Besides I have LOTS of stored foods and hopefully will find a place with room somewhere for my 2 full freezers.

If lucky I may have more than a year... a lot depends on a new med that's $1,000/month. I don't have the med yet as no local pharmacies stock it, but it IS now on order. The med I have to reduce ammonia is disgusting as it causes very abrupt diarrhea, but my ammonia level is slowly coming down. Maybe not enough soon enough, only Time will tell.

I WILL post from time to time, esp. in the dead of winter when I can't do much else except sort and pack (and that gets old quickly, not to mention it's tiring( but it won't be consistent. I have very little energy now and I'm losing weight.


  1. Oh, Darius, I am so sorry to hear this!! I figured something was up when your posts became so few and far between. I do hope that your medications work their magic and that the move to Asheville turns out to be a blessing. You have given so much of yourself through your blog and have many friends who wish you the best possible outcome. Our hearts are with you!

  2. I'm very sorry to read of the severity of your health problems. I've heard good things about Asheville and hope your relocation goes smoothly.

    {Best wishes}

  3. I too am so sorry to hear this news. Your blog has been such a blessing. You have sent me in so many new exciting and beneficial directions. I am going to stay hopeful Darius. It's just the way I am made. Please keep us informed. Otherwise we will just worry about you. Not everything can be overcome, but a lot can be. I am hoping this will be one of those. Hugs to you...you wont be far from my thoughts.

  4. I am sorry to hear it's progressed this far. The brainfog is not fun. I do hope the med comes through for you and does help. I do not envy you having to move at this time. But it's probably best to be much nearer your medical care facility. I do hope all goes easy and well, and you can manage to post when you are able. I'm going to miss frequently reading your thoughts on things as I found them very interesting and informative. My thoughts are with you.

  5. Darius I am so sad to hear that your health problems are so troublesome. I love your blog., You have a strong wonderful spirit. You are such a wonderful inspiration to me .
    Your move will be a big help to you. I hope your new medication will work well . You will be in my prayers

  6. It is good to be around people when health is not good. . .good to know you are loved and are not alone. i think you are doing the right thing.

  7. This is a sad situation after all the hopes, dreams and work you have put into your garden, and research into healthier ways to cook and eat. I hope you will be able to continue sharing your knowledge with us, even on a very limited scale. I agree that moving to where you will have friends, help and good medical facilities available is the best solution. I hope the new medicine will turn your health around! Do keep in touch, you are important to so many people. Wishing you the best....

  8. Replies
    1. Thanks for asking... I was in the hospital again this week. It's getting old!


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